Health and Medical Guide to Genetics vs. Birth Defects Muscular Dystrophy Health information topics about Muscular Dystrophy: Children 1. Everybody's Different Nobody's Perfect Muscular Dystrophy Association http://www.mdausa.org/publications/nobody/index.html 2. Breathe Easy: Respiratory Care for Children with M Muscular Dystrophy Association http://www.mdausa.org/publications/breathe/index.html 3. Meaning of Muscular Dystrophy Nemours Foundation http://kidshealth.org/kid/health_problems/bone/muscular_dystrophy.html Clinical Trials 1. ClinicalTrials.gov: Muscular Dystrophies National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D009136&recruiting... 2. ClinicalTrials.gov: Muscular Dystrophy, Duchenne National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D020388&recruiting... Coping 1. Parents & Family: Connecting with Your Son Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/emotional/connecting.html 2. Learning to Live with Neuromuscular Disease: A Mes Muscular Dystrophy Association http://www.mdausa.org/publications/learning/index.html 3. 101 Hints to "Help-with-Ease" fo Muscular Dystrophy Association http://www.mdausa.org/publications/101hints/ Diagnosis/Symptoms 1. Muscle Biopsies Muscular Dystrophy Association http://www.mdausa.org/publications/Quest/q74ss.html 2. Accurate and Affordable Diagnosis of Duchenne Musc National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/news_and_events/news_articles/news_article_dmd_tes... 3. Creatine Kinase Test Muscular Dystrophy Association http://www.mdausa.org/publications/Quest/q71ss-cktest.html 4. Electromyography and Nerve Conduction Velocities Muscular Dystrophy Association http://www.mdausa.org/publications/Quest/q75ss.html Disease Management 1. Physical Therapy Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/physical.html Genetics 1. Genetics Home Reference: Muscular dystrophy, Duche National Library of Medicine http://ghr.nlm.nih.gov/condition=musculardystrophyduchenneandbeckertypes 2. Genetics Home Reference: Myotonic dystrophy National Library of Medicine http://ghr.nlm.nih.gov/condition=myotonicdystrophy 3. Genes and Disease: Duchenne Muscular Dystrophy National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd... 4. Genes and Disease: Myotonic Dystrophy National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd... National Institutes of Health 1. Muscular Dystrophy (MD) National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/md/md.htm Newsletters/Print Publications 1. Quest Muscular Dystrophy Association http://www.mdausa.org/publications/Quest/q-curr.cfm Organizations 1. National Institute of Neurological Disorders and S http://www.ninds.nih.gov/ 2. National Institute of Arthritis and Musculoskeleta http://www.niams.nih.gov/ 3. Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/ 4. Muscular Dystrophy Association http://www.mdausa.org/ Overviews 1. Muscular Dystrophy Mayo Foundation for Medical Education and Research http://www.mayoclinic.com/invoke.cfm?id=DS00200 2. Major Characteristics of the Nine (9) Muscular Dys Muscular Dystrophy Association http://www.mdausa.org/publications/fa-md-9.html Related Issues 1. Seating Requirements for Young Men with DMD Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/seating_req.html 2. Parents & Family: Daily Life with Duchenne Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/emotional/life.html 3. Frequently Asked Questions about Wheelchairs Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/wheelchairsfaq.html 4. Frequently Asked Questions about the Use of Splint Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/splintsFAQ.html Research 1. Protein May Hold Key to Repair of Damaged Muscles National Institute of Arthritis and Musculoskeletal and Skin Diseases http://www.niams.nih.gov/ne/highlights/spotlight/2004/follistatin.htm 2. MDA Research Advances Rapidly Muscular Dystrophy Association http://www.mdausa.org/publications/resdev.html 3. Gene Therapy Reaches All Damaged Muscles in Muscul National Institute of Arthritis and Musculoskeletal and Skin Diseases http://www.niams.nih.gov/ne/highlights/spotlight/2004/gene_muscle_mouse.htm... 4. Exercise is Safe and Beneficial for People with Fa American Academy of Neurology http://www.neurology.org/cgi/content/full/64/6/E22?maxtoshow=&HITS=20&hits=... 5. New Gene Therapy Vector May Lead to Treatment for National Institute of Child Health and Human Development http://www.ninds.nih.gov/news_and_events/news_articles/news_article_md_gene... 6. Scientists Come Step Closer to New Muscular Dystro National Institute of Arthritis and Musculoskeletal and Skin Diseases http://www.niams.nih.gov/ne/highlights/spotlight/2005/heregulin.htm Specific Conditions 1. Distal Muscular Dystrophy (DD) Muscular Dystrophy Association http://www.mdausa.org/disease/dd.html 2. Congenital Muscular Dystrophy (CMD) Muscular Dystrophy Association http://www.mdausa.org/disease/cmd.html 3. Duchenne Muscular Dystrophy (DMD) (Also Known as P Muscular Dystrophy Association http://www.mdausa.org/disease/dmd.html 4. Becker Muscular Dystrophy (BMD) Muscular Dystrophy Association http://www.mdausa.org/disease/bmd.html 5. Emery-Dreifuss Muscular Dystrophy (EDMD) Muscular Dystrophy Association http://www.mdausa.org/disease/edmd.html 6. Facioscapulohumeral Muscular Dystrophy (FSH or FSH Muscular Dystrophy Association http://www.mdausa.org/disease/fshd.html 7. Myotonic Dystrophy (DM) (Also known as Steinert� Muscular Dystrophy Association http://www.mdausa.org/disease/dm.html 8. Oculopharyngeal Muscular Dystrophy (OPMD) Muscular Dystrophy Association http://www.mdausa.org/disease/opmd.html 9. Rare Muscular Dystrophies: Congenital, Distal, Eme Muscular Dystrophy Association http://www.mdausa.org/publications/fa-rareMD.html 10. Limb-Girdle Muscular Dystrophy (LGMD) Muscular Dystrophy Association http://www.mdausa.org/disease/lgmd.html Teenagers 1. Muscular Dystrophy Nemours Foundation http://kidshealth.org/teen/diseases_conditions/bones/muscular_dystrophy.htm... Treatment 1. Steroids / Nutritional Supplements / Antibiotics Parent Project for Muscular Dystrophy Research http://www.parentprojectmd.org/treatment/supplements.html   Recommended Resources: Yahoo! News: Medications/Drugs News Medications/Drugs News Clinical Trials Update: March 12, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Plavix Less Effective in Some Patients (HealthDay) HealthDay - FRIDAY, March 12 (HealthDay News) -- The anti-clotting drug Plavix must now carry a "black box" warning on its label, alerting patients and doctors that some people don't metabolize the medication properly, U.S. health officials said Friday. Long-used, little-studied laxative safe, effective (Reuters) Reuters - Until now, a scant number of top notch clinical trials have evaluated whether sodium picosulfate -- the active ingredient in numerous over-the-counter laxatives -- is safe and effective. Clinical Trials Update: March 10, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Alternative to Statins Shows Promise (HealthDay) HealthDay - WEDNESDAY, March 10 (HealthDay News) -- A thyroid-derived cholesterol-lowering drug that could be an alternative to the widely used statin medications has done well in a small, early trial, Swedish and American researchers report. For Tough Head Lice, Pill Tops Lotion (HealthDay) HealthDay - WEDNESDAY, March 10 (HealthDay News)-- In children with hard-to-treat head lice, the oral medication ivermectin is more effective than the standard treatment, the topical cream malathion, new research finds. FDA rules out bisphosphonate, thigh fracture link (Reuters) Reuters - U.S. regulators said on Wednesday they have found no link between oral bisphosphonate osteoporosis medications such as Merck & Co Inc's Fosamax and certain thigh bone fractures. Despite law, drug safety still a concern at FDA (Reuters) Reuters - Recent new powers have helped the U.S. Food and Drug Administration combat contaminated medications, counterfeit pills and other safety woes, but more work is needed to address lingering concerns about drug risks, FDA officials said on Wednesday. Clinical Trials Update: March 9, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Most Drug Studies Don't Help Docs Pick Best Treatment (HealthDay) HealthDay - TUESDAY, March 9 (HealthDay News) -- Less than one-third of drug studies published in major medical journals answer the fundamental question of which of the range of available medications works best for a particular condition. Medication fears lead to worse side effects (Reuters) Reuters - It may not be surprising, but a new study offers some proof that patients who are worried about their medications are more likely to have side effects from them. Home abortion drug use effective, safe for most (Reuters) Reuters - Medication-induced home abortions are safe for women who are 50 to 63 days pregnant, a new study from Sweden shows. HIV Hides Out in Bone Marrow Cells (HealthDay) HealthDay - SUNDAY, March 7 (HealthDay News) -- Medications can reduce the level of the AIDS virus in the blood to zero, but HIV doesn't disappear and often roars back when patients stop taking their pills. Now, research is giving scientists new insight into how the virus manages to hide and avoid the killing powers of medicine. Study Looks At Cost-Effectiveness of ECG in Hyperactive Kids (HealthDay) HealthDay - MONDAY, March 8 (HealthDay News) -- Electrocardiogram screening to check for heart problems in hyperactive children before prescribing stimulant medications may help identify those at risk, but is only borderline cost-effective compared to the current practice of taking a patient history and doing a physical examination, a new study shows. Thailand seeks WTO solution on generic drugs (AFP) AFP - A senior Thai official voiced hope Monday for a WTO solution on the production of low-cost generic drugs, an issue that has stirred friction with Western companies.