Health and Medical Guide to Genetics vs. Birth Defects Hemophilia Health information topics about Hemophilia: Children 1. Baby & Toddler Tips National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_newly5.htm 2. Hemophilia Nemours Foundation http://kidshealth.org/parent/medical/heart/hemophilia.html 3. How to Deal with Hemophilia Nemours Foundation http://kidshealth.org/kid/health_problems/blood/hemophilia.html Clinical Trials 1. ClinicalTrials.gov: Hemophilia A National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D006467&recruiting... 2. ClinicalTrials.gov: Blood Coagulation Disorders National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D001778&recruiting... Coping 1. Information for Teachers and Childcare Providers National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_providers.htm 2. Tips for Travellers World Federation of Hemophilia http://www.wfh.org/ShowDoc.asp?Rubrique=26&Document=53&IndLangue=2 Diagnosis/Symptoms 1. PT and INR American Association for Clinical Chemistry http://labtestsonline.org/understanding/analytes/pt/test.html 2. Fibrinogen American Association for Clinical Chemistry http://www.labtestsonline.org/understanding/analytes/fibrinogen/test.html 3. aPTT American Association for Clinical Chemistry http://www.labtestsonline.org/understanding/analytes/aptt/test.html Dictionaries/Glossaries 1. Bleeding Disorders: Glossary National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_glossary.htm Directories 1. Hemophilia Treatment Centers National Center for HIV, STD, and TB Prevention http://www.cdc.gov/ncbddd/hbd/htc_list.htm 2. Global Treatment Center Directory World Federation of Hemophilia http://www.wfh.org/passport/Passport.asp 3. Find a Pediatric Hematologist/Oncologist American Society of Pediatric Hematology/Oncology http://www.aspho.org/custom/directory/?pageid=235 4. Find a Hematologist American Society of Hematology https://ash.ebiz.uapps.net/solutionsite/fah/fahhome.htm Financial Issues 1. Bleeding Disorders: Financial and Insurance Issues National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_issues.htm Genetics 1. Genes and Disease: Hemophilia A National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd... 2. Gene Therapy National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_gene.htm 3. Genetics Home Reference: Hemophilia National Library of Medicine http://ghr.nlm.nih.gov/condition=hemophilia National Institutes of Health 1. Hemophilia National Heart, Lung, and Blood Institute http://www.nhlbi.nih.gov/health/dci/Diseases/hemophilia/hemophilia_what.htm... Organizations 1. National Heart, Lung, and Blood Institute http://www.nhlbi.nih.gov/ 2. National Hemophilia Foundation http://www.hemophilia.org/ Overviews 1. What is Hemophilia? Dolan DNA Learning Center http://www.yourgenesyourhealth.org/hemo/whatisit.htm 2. Hemophilia in Pictures World Federation of Hemophilia http://www.wfh.org/ShowDoc.asp?Rubrique=31&Document=181&IndLangue=2 3. Hemophilia Mayo Foundation for Medical Education and Research http://www.mayoclinic.com/invoke.cfm?id=DS00218 4. Frequently Asked Questions: Hemophilia World Federation of Hemophilia http://www.wfh.org/ShowDoc.asp?Rubrique=28&Document=42&IndLangue=2 Specific Conditions 1. Prothrombin 20210 Mutation (Factor II Mutation) American Heart Association http://circ.ahajournals.org/cgi/content/full/110/3/e15 2. Factor I Deficiency (Afibrinogenemia) National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types4.htm 3. Factor II Deficiency (Prothrombin) National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types5.htm 4. Factor V Deficiency National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types6.htm 5. Factor VII Deficiency (Proconvertin or Stable Fact National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types7.htm 6. Factor X Deficiency (Stuart Prower Factor) National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types8.htm 7. Factor XI Deficiency (Hemophilia C, Plasma Thrombo National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types9.htm 8. Factor XII Deficiency (Hageman Factor) National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types10.htm 9. Factor XIII Deficiency National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types11.htm 10. Hemophilia A (Factor VIII Deficiency) National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types1.htm 11. Hemophilia B (Factor IX Deficiency) National Hemophilia Foundation http://www.hemophilia.org/bdi/bdi_types2.htm Teenagers 1. Hemophilia Nemours Foundation http://kidshealth.org/teen/diseases_conditions/blood/hemophilia.html Treatment 1. New Recombinant Antihemophilic Factor Licensed Food and Drug Administration http://www.fda.gov/bbs/topics/ANSWERS/2003/ANS01241.html   Recommended Resources: Yahoo! News: Medications/Drugs News Medications/Drugs News Clinical Trials Update: March 12, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Plavix Less Effective in Some Patients (HealthDay) HealthDay - FRIDAY, March 12 (HealthDay News) -- The anti-clotting drug Plavix must now carry a "black box" warning on its label, alerting patients and doctors that some people don't metabolize the medication properly, U.S. health officials said Friday. Long-used, little-studied laxative safe, effective (Reuters) Reuters - Until now, a scant number of top notch clinical trials have evaluated whether sodium picosulfate -- the active ingredient in numerous over-the-counter laxatives -- is safe and effective. Clinical Trials Update: March 10, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Alternative to Statins Shows Promise (HealthDay) HealthDay - WEDNESDAY, March 10 (HealthDay News) -- A thyroid-derived cholesterol-lowering drug that could be an alternative to the widely used statin medications has done well in a small, early trial, Swedish and American researchers report. For Tough Head Lice, Pill Tops Lotion (HealthDay) HealthDay - WEDNESDAY, March 10 (HealthDay News)-- In children with hard-to-treat head lice, the oral medication ivermectin is more effective than the standard treatment, the topical cream malathion, new research finds. FDA rules out bisphosphonate, thigh fracture link (Reuters) Reuters - U.S. regulators said on Wednesday they have found no link between oral bisphosphonate osteoporosis medications such as Merck & Co Inc's Fosamax and certain thigh bone fractures. Despite law, drug safety still a concern at FDA (Reuters) Reuters - Recent new powers have helped the U.S. Food and Drug Administration combat contaminated medications, counterfeit pills and other safety woes, but more work is needed to address lingering concerns about drug risks, FDA officials said on Wednesday. Clinical Trials Update: March 9, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Most Drug Studies Don't Help Docs Pick Best Treatment (HealthDay) HealthDay - TUESDAY, March 9 (HealthDay News) -- Less than one-third of drug studies published in major medical journals answer the fundamental question of which of the range of available medications works best for a particular condition. Medication fears lead to worse side effects (Reuters) Reuters - It may not be surprising, but a new study offers some proof that patients who are worried about their medications are more likely to have side effects from them. Home abortion drug use effective, safe for most (Reuters) Reuters - Medication-induced home abortions are safe for women who are 50 to 63 days pregnant, a new study from Sweden shows. HIV Hides Out in Bone Marrow Cells (HealthDay) HealthDay - SUNDAY, March 7 (HealthDay News) -- Medications can reduce the level of the AIDS virus in the blood to zero, but HIV doesn't disappear and often roars back when patients stop taking their pills. Now, research is giving scientists new insight into how the virus manages to hide and avoid the killing powers of medicine. Study Looks At Cost-Effectiveness of ECG in Hyperactive Kids (HealthDay) HealthDay - MONDAY, March 8 (HealthDay News) -- Electrocardiogram screening to check for heart problems in hyperactive children before prescribing stimulant medications may help identify those at risk, but is only borderline cost-effective compared to the current practice of taking a patient history and doing a physical examination, a new study shows. Thailand seeks WTO solution on generic drugs (AFP) AFP - A senior Thai official voiced hope Monday for a WTO solution on the production of low-cost generic drugs, an issue that has stirred friction with Western companies.