Health and Medical Guide to Genetics vs. Birth Defects Cystic Fibrosis Health information topics about Cystic Fibrosis: Children 1. Cystic Fibrosis Nemours Foundation http://kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html 2. Cystic Fibrosis Nemours Foundation http://kidshealth.org/parent/medical/lungs/cf.html 3. School, Enzymes, and Sports for the Child with Cys Cystic Fibrosis Foundation http://www.cff.org/publications/files/NutritionSchoolEnzymesSportsandCF.pdf... Clinical Trials 1. Commonly Asked Questions about Clinical Trials Cystic Fibrosis Foundation http://www.cfservicespharmacy.com/homeline_newsletter/archive/index.cfm?art... 2. ClinicalTrials.gov: Cystic Fibrosis National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D003550&recruiting... Diagnosis/Symptoms 1. Trypsinogen Test American Association for Clinical Chemistry http://www.labtestsonline.org/understanding/analytes/trypsinogen/test.html 2. Sweat Testing Cystic Fibrosis Foundation http://www.cff.org/living_with_cf/patient_and_family_education/diagnosing_c... Directories 1. State Adult Assistance Programs Cystic Fibrosis Foundation http://www.cff.org/living_with_cf/insurance_and_assistance_programs/adult_a... 2. Public Assistance Programs Cystic Fibrosis Foundation http://www.cff.org/UploadedFiles/living_with_cf/Files/Public%20Assistance%2... 3. Cystic Fibrosis Foundation Chapters and Care Cente Cystic Fibrosis Foundation http://www.cff.org/chapters_and_care_centers/ Disease Management 1. JAMA Patient Page: Assisted Breathing American Medical Association http://www.medem.com/medlb/article_detaillb.cfm?article_ID=ZZZQIIHFFGC&sub_... 2. Introduction to Airway Clearance Cystic Fibrosis Foundation http://www.cff.org/UploadedFiles/living_with_cf/Files/Airway%20Clearance%20... 3. Home Oxygen Therapy American Association for Respiratory Care http://www.yourlunghealth.org/staying_healthy/health_tips/home_oxygen_thera... Genetics 1. Learning about Cystic Fibrosis National Human Genome Research Institute http://www.genome.gov/page.cfm?pageID=10001213 2. Genetics Home Reference: Cystic fibrosis National Library of Medicine http://ghr.nlm.nih.gov/condition=cysticfibrosis Nutrition 1. Pancreatic Enzyme Replacement in People with Cysti Cystic Fibrosis Foundation http://www.cff.org/publications/files/NutritionPancreaticEnzymeReplacement.... 2. Nutrition for Your Infant with Cystic Fibrosis (Bi Cystic Fibrosis Foundation http://www.cff.org/publications/files/NutritionForYourInfantwCF.pdf 3. Nutrition for Your Child with Cystic Fibrosis (Fou Cystic Fibrosis Foundation http://www.cff.org/publications/files/NutritionForYourChildwCF.pdf 4. Nutrition for Teens with Cystic Fibrosis Cystic Fibrosis Foundation http://www.cff.org/publications/files/NutritionForTeenswCF.pdf 5. Nutrition and Cystic Fibrosis: Changes through Lif Cystic Fibrosis Foundation http://www.cff.org/publications/files/NutritionandCFChangesThroughLife.pdf 6. FDA Requires Review and Approval of Pancreatic Enz Cystic Fibrosis Foundation http://www.cff.org/UploadedFiles/living_with_cf/Files/FDAEnzymeQA4-04.pdf 7. Nutrition for Your Toddler with Cystic Fibrosis (O Cystic Fibrosis Foundation http://www.cff.org/publications/files/NutritionForYourToddlerwCF2.pdf Organizations 1. National Heart, Lung, and Blood Institute http://www.nhlbi.nih.gov/ 2. National Institute of Diabetes and Digestive and K http://www.niddk.nih.gov/ 3. Cystic Fibrosis Foundation http://www.cff.org/ Overviews 1. What is Cystic Fibrosis? Dolan DNA Learning Center http://www.yourgenesyourhealth.org/cf/whatisit.htm 2. JAMA Patient Page: Cystic Fibrosis American Medical Association http://www.medem.com/medlb/article_detaillb.cfm?article_ID=ZZZIX1MDUEC&sub_... 3. Cystic Fibrosis Mayo Foundation for Medical Education and Research http://www.mayoclinic.com/invoke.cfm?id=DS00287 Prevention/Screening 1. Cystic Fibrosis Testing: What Happens If Both My American College of Obstetricians and Gynecologists http://www.medem.com/medlb/article_detaillb.cfm?article_ID=ZZZQRC4JUSC&sub_... 2. Cystic Fibrosis Carrier Testing: The Decision Is American College of Obstetricians and Gynecologists http://www.medem.com/medlb/article_detaillb.cfm?article_ID=ZZZJE8XUUSC&sub_... Related Issues 1. Burkholderia Cepacia Frequently Asked Questions Cystic Fibrosis Foundation http://www.cff.org/UploadedFiles/living_with_cf/Files/B%20cepacia%20FAQ%20f... 2. Respiratory: What You Should Know about Germs Cystic Fibrosis Foundation http://www.cff.org/UploadedFiles/publications/files/Respiratory%20--%20What... 3. Respiratory: Stopping the Spread of Germs Cystic Fibrosis Foundation http://www.cff.org/images/customcontent/Respiratory_--_Stopping_the_Spread_... 4. Day-to-Day: Know Your Health Insurance Coverage Cystic Fibrosis Foundation http://www.cff.org/publications/files/DaytoDayKnowYourInsurance.pdf Research 1. Curcumin: Information for Patients and Families Cystic Fibrosis Foundation http://www.cff.org/UploadedFiles/living_with_cf/Files/CurcuminQAUpdateLH.pd... 2. Glutathione and Other Antioxidants: Questions and Cystic Fibrosis Foundation http://www.cff.org/UploadedFiles/living_with_cf/Files/Glutathione%20Q%20&%2... 3. Research with Red Tide Toxin Yields Potential Ther National Institute of Environmental Health Sciences http://www.nih.gov/news/pr/nov2004/niehs-16.htm Teenagers 1. Cystic Fibrosis Nemours Foundation http://kidshealth.org/teen/diseases_conditions/digestive/cystic_fibrosis.ht... Treatment 1. Questions and Answers on Exocrine Pancreatic Insuf Food and Drug Administration http://www.fda.gov/cder/drug/infopage/pancreatic_drugs/pancreatic_qa.htm 2. Lung Transplantation and CF Cystic Fibrosis Foundation http://www.cff.org/UploadedFiles/publications/patient_and_family_education/... 3. Current Treatments American Association for Respiratory Care http://www.yourlunghealth.org/diseases_conditions/cystic_fibrosis/current_t... 4. Azithromycin for People with Cystic Fibrosis: Is I Cystic Fibrosis Foundation http://www.cff.org/UploadedFiles/living_with_cf/Files/AzithromycinPatients1...   Recommended Resources: Yahoo! News: Medications/Drugs News Medications/Drugs News Long-used, little-studied laxative safe, effective (Reuters) Reuters - Until now, a scant number of top notch clinical trials have evaluated whether sodium picosulfate -- the active ingredient in numerous over-the-counter laxatives -- is safe and effective. Clinical Trials Update: March 10, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Alternative to Statins Shows Promise (HealthDay) HealthDay - WEDNESDAY, March 10 (HealthDay News) -- A thyroid-derived cholesterol-lowering drug that could be an alternative to the widely used statin medications has done well in a small, early trial, Swedish and American researchers report. For Tough Head Lice, Pill Tops Lotion (HealthDay) HealthDay - WEDNESDAY, March 10 (HealthDay News)-- In children with hard-to-treat head lice, the oral medication ivermectin is more effective than the standard treatment, the topical cream malathion, new research finds. FDA rules out bisphosphonate, thigh fracture link (Reuters) Reuters - U.S. regulators said on Wednesday they have found no link between oral bisphosphonate osteoporosis medications such as Merck & Co Inc's Fosamax and certain thigh bone fractures. Despite law, drug safety still a concern at FDA (Reuters) Reuters - Recent new powers have helped the U.S. Food and Drug Administration combat contaminated medications, counterfeit pills and other safety woes, but more work is needed to address lingering concerns about drug risks, FDA officials said on Wednesday. Clinical Trials Update: March 9, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Most Drug Studies Don't Help Docs Pick Best Treatment (HealthDay) HealthDay - TUESDAY, March 9 (HealthDay News) -- Less than one-third of drug studies published in major medical journals answer the fundamental question of which of the range of available medications works best for a particular condition. Medication fears lead to worse side effects (Reuters) Reuters - It may not be surprising, but a new study offers some proof that patients who are worried about their medications are more likely to have side effects from them. Home abortion drug use effective, safe for most (Reuters) Reuters - Medication-induced home abortions are safe for women who are 50 to 63 days pregnant, a new study from Sweden shows. HIV Hides Out in Bone Marrow Cells (HealthDay) HealthDay - SUNDAY, March 7 (HealthDay News) -- Medications can reduce the level of the AIDS virus in the blood to zero, but HIV doesn't disappear and often roars back when patients stop taking their pills. Now, research is giving scientists new insight into how the virus manages to hide and avoid the killing powers of medicine. Study Looks At Cost-Effectiveness of ECG in Hyperactive Kids (HealthDay) HealthDay - MONDAY, March 8 (HealthDay News) -- Electrocardiogram screening to check for heart problems in hyperactive children before prescribing stimulant medications may help identify those at risk, but is only borderline cost-effective compared to the current practice of taking a patient history and doing a physical examination, a new study shows. Thailand seeks WTO solution on generic drugs (AFP) AFP - A senior Thai official voiced hope Monday for a WTO solution on the production of low-cost generic drugs, an issue that has stirred friction with Western companies. Drug addiction 'disaster' faces developing world: UN (AFP) AFP - Developing countries could face a "health disaster" if wealthy countries fail to control drugs, the United Nations Office on Drugs and Crime warned on Monday. Clinical Trials Update: March 5, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: